Raising Awareness…
Here are some stories about the people we have helped, which explains the impact of our work and why we feel it is so important.

Bullied and cornered but afloat by resolve

Pradeep Rahane (name changed) is a 15 years old teenager living in Hingoli city of Maharashtra along with his parents and an elder sister. He is visually impaired since his childhood. He heard Eyeway promos on radio and instantly got in touch with National Eyeway Helpdesk in Mumbai in May 2017. He was looking for a blind school in Pune.

We provided him contact details of Koregoan Park School, Pune for blind and Victoria Memorial School for Blind, Mumbai. Eyeway counselor helped him understand the practical challenges and realities of studying in a
new school in metro cities. He was also informed that he can get new exposure in metro cities schools because of better technology and assistance he could encounter. This was conveyed as a possibility for enhancing his ability as a visually impaired student.

On probing further we found out that  Pradeep had studied in blind school till 7th standard and he moved to Z.P. School which is a mainstream school due to lack of a blind school in his area for class 8th. The school lacks the availability of special educators and he experienced non-cooperative teachers. The teachers seemed unskilled to teach visually impaired students. Pradeep could not gain any study material in accessible formats like braille script or audio formats from the school. He solely depended on listening to the teachers in the class. In addition to the challenges in studying, sighted classmates also bullied him due to his blindness.

Pradeep has been a bright student since childhood but he faced many problems in the mainstream school. He also faced problems in availing scribe facility. This even led to one of his teachers advising him to change schools. But he was persistent on continuing in the same school ignoring all the antagonisms. He was dogged and brave to think much longer into his own future. His acceptance of his condition was there on the forefront when he decided that he is continuing in the mainstream school. He reasoned himself that he will be doing his college and that will be with the sighted world. He tutored himself that he would rather continue in the mainstream school and prepare for a future with the sighted than shift to a blind school.

Eyeway appreciated and reinforced his zeal to continue his studies in a mainstream school. As additional support, Eyeway counselor put him in touch with NAB, Mumbai to get study material in accessible formats. Our counselor motivated him to learn computer with the help of screen readers and gave him a soft copy of computer tutorial. Eyeway counselor also apprised him of the importance of assistive technology in how it could help in achieving all his goals.  On a follow-up, it was understood that Pradeep has started learning to use an Android phone with the help of talkback. He has learned to adjust with sighted students as he is focused on the bigger goal in his life.

Economic empowerment is integral for independence

Anjali (name changed) is 28 years old and is a resident of Shillong. She is blind from birth. Her father passed away and her mother is working as a farmer. She came to know about Eyeway through one of our counselors. She completed her graduation in 2015 and underwent three months skill employment training in Enable India.  After that, she did an internship in LemonTree Hotel but she was not absorbed as a full-time employee there. In 2017 she reached out to Eyeway seeking some opportunities to work. As directed by the Eyeway counselor she shared her CV and we put her in touch with Preeti Monga who heads a HR Recruiting agency called Silver Linings. Preeti runs the agency for both people with and without disabilities. Anjali was recruited as a trainee to shortlist CVs and further coordinate with the agency by vetting and shortlisting desirable CVs. She started with Preeti Monga on 9 October 2017. From December a stipend was instituted for her.

On a follow-up call, Ms. Monga informed that Anjali was very happy and doing a good job. Silver Linings have also taken care of her accommodation and food free of cost in their hostel. Once she completes 3 months, her work will be reviewed to finalize her confirmation in the job.

Neither a man nor any disability, let alone cancer

Aditi (name changed) is a resident of Ghaziabad, Uttar Pradesh. She is 30 years old, a graduate in Commerce and she got in touch with Eyeway in 2017. She was referred to Eyeway by one of her friends. She wanted to gain employment in order to be economically stable and independent.

She had gone through some tough times in life. Her eye condition Glaucoma was first detected in 2011 and since then she underwent treatment in many hospitals. Her eye condition affected her personal life also when her husband left her. She underwent a year-long treatment in Centre of Sight, Delhi where doctors gave her a faint hope of restoration of her vision. She was prescribed some pills by doctors, which didn’t make any difference in her eye condition. The eye condition also affected her job. She was working as a telecaller with a company called “Rich Feel” which works on hair fall and loss treatment. She as a telecaller handled product advertisement and description activities for the company. But her vision loss made her give up the job in 2011. Since then her life is limited to hospital treatments and house arrest with her father, brother, and sister-in-law. Her source of income is her father’s job in the UP police department and her brother’s business.
After the first line of treatment proving ineffective, she approached the Guru Nanak Eye Hospital, Delhi for treatment. But from there she got more satisfying treatment where the doctors within two days listed her for surgery and informed her that the surgery doesn’t assure vision gain but the result might be a complete vision loss. This was not like the first time when she was given sustained hopes but hardly anything was fruitful. She underwent an operation on 28 Feb 2014 at AIIMS and the result was no different – majority vision was lost. In 2015-2016 she was also diagnosed with throat cancer. After that, she went through depressive and lonely phases of life for three years until she approached Eyeway in 2017. She approached Eyeway for counsel to have a new beginning.

Eyeway counselor suggested her to initially gain a disability certificate and directed her to AIIMS. She got her disability certificate with help from her father from AIIMS certified with 75% disability. Counselor also apprised her about computer training for people with visual impairment and our T.V. serial Nazar Ya Nazariya that covers a wide range of case stories of successful visually impaired people. But Aditi stands tall on all these problems that affected her – divorce, vision loss, cancer – by courageously overcoming it with determination and not giving up. Now she can think only about how she can make her life productive by enhancing her capacities through training, education and an employment.

On a follow-up call, she sounded optimistic and shared that she is living a happy life. She has enrolled in in NAB Delhi for a four months Computer Training. She is an inspiration to many in defeating all these odds and still keeping her head above water. She was never intimidated by vision loss, cancer or her husband who left her in the lurch.

Retention of information or with sufficient reason

Banking Ombudsman Scheme, 2006 (Amended 2017) in its Chapter 4 (8-Grounds of Complaint) (r) states “forced closure of deposit accounts without due notice or without sufficient reason” as a circumstance for redressal of grievance. Vikram Joshi (name changed) turned blind when he was 3 years old as a reaction to a medication he was taking. But his ambitions and hard work never stopped him from taking the less trodden path to success in life. He did his Post-Graduation from Ferguson College, Mumbai in the English Language. Though he tried for public sector jobs he was unsuccessful in finding one. Thus, he mobilized his self-belief and confidence to start a self-employment venture. He had a Savings Account in Axis Bank where he applied for a bank loan to start a self-employed venture. This was when he got to know he was in a difficult situation with his savings bank account frozen and monetary excesses accrued by exceeding his credit card limit. The Bank took freezing of his Savings Account as a corrective measure to this circumstance and this information was retained for a period of three months between his account freeze and Vikram seeking a bank loan.

There is a clear retention of information in this case by the bank but will that serve as a sufficient reason in closing his account is a question to moot but doing it without notice is not justifying the act. Vikram’s requests for allocating some time to pay back the excess sum has been responded to rudely and his loan application was put on hold till he paid back the excess sum. His account was held frozen till the aforesaid condition was met by Vikram. This was when Vikram contacted Eyeway.

Eyeway Counselor shared the RBI and IBA circulars which explain resolutions for such circumstances. We also shared with him the contact of Rajesh Asudani, RBI Nagpur Office who in turn advised him to approach the Axis Bank head office in Mumbai. At the head office, he received good cooperation and the issue was resolved. He was allotted time to repay the excess sum. He later chose to withdraw the loan application from Axis Bank. He applied in SBI and received the loan promptly. Using the money he could start an agro-agency selling agricultural seeds, saplings, fertilizers etc. He is running the agency successfully and also plans to start new ventures for more economic gain.

Banks need to be educated

Banks are under-educated on banking norms and policies. They are unaware of their own apex body’s circulars and notifications. Whose fault is it? The clients are often at the receiving end of this ignorant and indifferent attitude of officials. Ashok Dhoni (name changed), a 17-year-old teenager from Ranchi, Jharkhand is suffering at the hands of two public sector banks – Oriental Bank of Commerce and Bank of Baroda-which adds to several other problems spewed out by nationalized banks in India. Ashok is the youngest of three siblings who were detected with Retinitis Pigmentosa (RP) at the age of six which has led to a gradual loss of vision. His family’s financial constraints add to the problems Ashok is facing in his life. He was put into a special school growing up, heeding to the advice of his brother’s Mathematics teacher. But the facilities were inadequate in the school and he was not happy there. He convinced his parents to move to Delhi seeking better opportunities and facilities. In Delhi, he enrolled in a Government Senior Secondary School under the Social Welfare Department and got a hostel accommodation. At school, he was actively involved in many cultural and academic activities. With limited support from his family, he helped himself finding scholarship programs to pursue his academic interests.

In hindsight, sourcing money was less hard than depositing and withdrawing it for meeting his needs. Ashok opened an account in the Oriental Bank of Commerce which denied him an ATM card. He finally got the ATM card after producing for himself the RBI and IBA circulars. Then on his attempt to get an ATM card from the Bank of Baroda where he had an account for the past two years seemed even more difficult. Not only he was denied an ATM card, he was asked to bring along two account holders to give an undertaking on his behalf. At the same, his blind friend was also denied the ATM card by the same bank.

Ashok contacted Eyeway regarding this matter and our counselor provided him the contact of Nodal Officer A. Shankar Narayanan, Deputy General Manager and Deputy Zonal Head, Bank of Baroda. The Nodal Officer confessed his poor knowledge on the matter inadvertently by responding that they are not aware of such provisions for blind and asked him to mail RBI and IBA circulars. He was also advised to drop his complaint in the branch complaint drop box. Ashok did drop his complaint and contacted the officer again after few days, but he refused that he had received any complaint from Ashok. He again contacted Eyeway and the second time we provided him the contact of R L Sharma at the Reserve Bank of India Office. The response is awaited on this matter and Eyeway is keen on the course of this issue.

Empowered by ambition

Manish (name changed) visited the Eyeway center in Delhi with his parents on 16th October 2017. He is a 15-year-old boy pursuing Class 10 in DPS Sushant Lok. He lives with his parents and younger brother in Gurgaon. His vision is affected by Coloboma (a hole in one of the structures of the eye, such as the iris, retina, choroid, or optic disc) since birth but his vision impairment was noticed only when he was in Class 1. He has had few retinal detachment surgeries to prevent total blindness. He was referred to Eyeway by Dr. Varshini Shanker of Shroff Charity Eye Hospital and also by one of our trustees, Rajive Raturi.

Kanishq is passionate about studying Chemistry in his higher classes. But he is unsure and apprehensive of the possibility of following his passion given his eye condition. His school teachers have already suggested exempting him from Math education as it is hard to teach the subject to someone with vision loss. Kanishq wanted to know if he could still study Chemistry despite the fact that he had to drop out his Math class.
He was also curious to learn about career options open for a blind person. He even expressed a desire to pursue Cricket as a career as he extremely enjoyed the sport. We suggested him legal profession as a possible career route.

Manish’s family was completely unaware of the laws and provisions in place for visually impaired people. We suggested them to read up on the latest RPWD Act and we also sent them details of the CBSE rules and provisions for blind students. We recommended him to start using computers for his classwork and exams. Eyeway advised his parents to talk to the school authorities to switch his mode of studies from writing to computers. We also suggested that the school authorities should inform CBSE so they can send appropriate question papers in soft copies in the future.
At this point, it seemed Manish’s main concern was to learn about ways that could help him to cope with his studies. Eyeway suggested him to visit Saksham to learn more about assistive technology and textbooks in accessible formats.

Unaware, banks make disabled suffer

Azhar Mahmood (name changed) from Ludhiana (Punjab) reached the Eyeway Helpdesk. He is 30 years old. He was partially blind by birth and later on became totally blind. He first got in touch with Eyeway on Sep 2016 and conveyed to the counselor that he got to know about the Helpdesk after listening to a radio programme Eyeway Yeh Hai Roshni Ka Karawan. As a child, he faced problems in his studies and later joined a special school to study Braille. After passing higher secondary, he got a government job in Grade D in Panchayati Raj Department which was five years ago. Azhar being a very industrious individual continued his studies further even with the job.  He completed his graduation and now he is pursuing his post-graduation.

A few months back he got in touch with us for some queries. He told us that he had a savings account in State Bank of India, Samrala branch, Ludhiana. Bank denying him a checkbook was his issue for which he was seeking redressal. Eyeway counselor provided him the RBI Circular which clearly states that ” Banking facilities including cheque book facility/operation of ATM/locker etc. cannot be denied to the visually challenged as they are legally competent to contract”. Also, the Banking Ombudsman Scheme, 2006 (amended 2017) assures provision for filing complaints and redressal of it. This is not one among the few cases but one among the multitude of banking services deprivation issues faced by visually impaired on a daily basis though these are clearly framed in the rule books as violations. These must be treated clearly as cases of ignorance and these banks must be educated that they are the debtors and their clients are the creditors and morally clients deserve a higher ground.

On follow-up, it was understood that he could resolve his banking problem by putting the RBI circular to effective use.

Bogged down by inaccessibility

30-year-old Nimmi Singh, a resident of Delhi who is totally blind approached Eyeway in the month of October. She is employed with All India Radio since 2013 as a Stenographer. But she faces a lot of accessibility issues in her day to day working which not only impacts her performance but also harms her dignity and independence.

For almost two years into the job, Nimmi was not provided with a computer to perform her daily duties. She finally got a computer in 2015 but it is of little use to her. As a blind user, she needs to have a computer with screen reading software, along with speakers and headphones. But the computer provided to her does not have screen reading software installed. Neither has she been issued speakers or headphones. At present, she is using her personal laptop to perform her duties.

The second challenge is with regards to marking her attendance. When she joined, she had to manually mark her attendance in a register. She depended on her sighted colleagues to mark a ‘P’ for her every day. This was later replaced by a swipe card which was again inaccessible to her. Nimmi depended on her limited light perception to catch a red light indicator when she swiped the card to mark her attendance. Now, this has been further replaced by a biometric machine which requires all employees to enter six digits of their Aadhar card and then their fingerprints on a touchpad. The machine is completely inaccessible for visually impaired people as it has no tactile or braille markings and neither does it have any talkback facility to guide the person. Nimmi has to depend on her sighted colleagues’ assistance to perform this basic function on a daily basis. This makes her feel dependent and disabled. She finds it humiliating for not being able to independently sail through the job functions or mark her attendance.

She sought help from her immediate supervisors and concerned department heads by lodging official complaints and requesting for assistive aids and appliances. She even wrote to the CCPD but till date hasn’t received any response. She tried to meet the CCPD in person to narrate her dilemma but was refused a meeting.

All it requires to help Nimmi is a computer with screen reading software (NVDA), headphones and speakers. As for the biometric machine, one can get in touch with technology vendors who can suggest customized solutions for accessibility. Alternately one can also explore to install braille indicators on the machine. Nimmi has also suggested the same to her section officer.

This case has been taken up by Eyeway as a case with the potential for advocacy and also to expose the system of its lacunae. Considering the limitations to be resolved on the Helpdesk and the need to force the ignorant system, Eyeway has engaged deeply with this case. Research desk has pulled out visible violations of the RPD Act 2016 like Section 40, 42(iii), 45 and the DoPT Guidelines 2014 whose guideline C on providing aids/assistive devices and guideline D on accessibility and barrier-free environment at the workplace is clearly violated. The matter of Nimmi’s inaccessibility has been conveyed to the CCPD. The matter was put directly under the attention of Deputy CCPD Dr. Sanjay Kant Prasad. All necessary documents have been filed along with Nimmi’s application as desired by the CCPD office. We hope the matter will soon be resolved so Nimmi can continue her job with independence and dignity.

Slowed down by denial and stigma

Ajit Sharma (name changed)  a 31-year-old resident of Delhi who went blind after he met with an accident in 2007 walked into Score Foundation with his parents. They are a well-to-do family, with Ajit’s father a businessman and mother a house-wife. Ajit has gone through the ordeal of being in a coma six months after he met with the accident. They got to know about Eyeway when one day they accidentally bumped into our Helpdesk Operations Manager. But it took them a whole year before they made up their mind to contact Eyeway Helpdesk. During the length of ten years between his accident and meeting with Eyeway, all Ajit could do was gain four-month computer training from NAB, R.K Puram. Though the number of years gone behind was less important in the face of the new found determination of Ajit to make use of his life with education and a job, there was an evident denial and stigma holding back his parents from accepting their son’s current needs in life. Some of the suggestions to provide speech therapy or psychiatric counseling were brushed under the carpet which was observed by the counselors as needful to Ajit’s physical and mental conditions.

But the counselors were successful in convincing Ajit and his parents of the need for education. The counselors suggested enrolling Ajit for a correspondence course with IGNOU. They were made to understand the availability of E-books through Gyan Kosh online resource library of IGNOU and audiobook libraries in NAB and Saksham. Also, demonstration of the Android phone and screening of Nazar Ya Nazariya was held by the counselors to make Ajit and his parents more aware of the possibilities of a life after blindness. We also put Ajit in contact with NGO Samarthanam in Delhi for a rehabilitative training.

On a follow-up call, it was understood that Ajit Sharma was admitted into Samarthanam where he will undergo training for life and mobility skills like computer, socialization, etc.

Rejuvenated by ambition

Kanika Gupta (name changed), a resident of Ghaziabad is 23 years old. She lost her vision due to Brain Tuberculosis in 2012. The subsequent medication also resulted in her developing locomotor disabilities, leaving her both visually and physically challenged. Thus, she couldn’t leave her house for a prolonged period of five years. But brave Kanika still had her ambitions entrenched, hardly affected by anything that was disabling her body. She kept dreaming about gaining higher education and securing a job. On one of her casual visits to Saksham Trust, Delhi about which she got to know from her sister in Mumbai she met with an Eyeway counselor who directed her to the Eyeway center at Score Foundation. She then visited Score Foundation with her parents who are lecturers by qualification but have changed their profession to take care of their daughter. Her father now has a sales job and her mother has turned housewife to be at an arm’s reach to their dear daughter. Kanika had finished her schooling five years back and now with immense support from her parents, she was thinking a “new beginning” in her life.

Understanding her enthusiasm and her parents’ faith in her potential Eyeway counselors took the best steps forward to encourage and inspire her. Eyeway placed hope and confidence in her mind and encouraged her to pursue graduation through correspondence from Indira Gandhi National Open University (IGNOU) in a subject of her liking. Counselors suggested to her career options like lectureship, starting a coaching center after any English courses from British Council, or start soft skill training as her communication skills were impressive.
Two of the counselors shared their own life experiences of having surmounted their disabilities with courage. This made a profound difference in her interaction for the remaining part of the meeting.

To learn and understand many similar lives of those who defeated any type of disability imposed by the world the counselors suggested watching Eyeway’s TV series ‘Nazar Ya Nazariya’. Also, the counselors made them aware of NVDA and JAWS software and talk back technology for Android phones that would help her normalize her life. The eyeway team emphasized on the need for Kanika to exert herself in physical exercises so she could gain back her locomotor abilities. Eyeway managed to send Kanika and her family back with great joy, optimism, and aspirations.

On a follow-up call, Eyeway learned that Kanika had enrolled for B.A Honors in English from IGNOU. She had also joined a computer training program in National Association for the Blind (NAB), Delhi but discontinued due to her locomotor problems. Our counselors then connected her with Ravinder Gupta, a home-based computer trainer so Kanika could easily pursue her training at home.